By Thomas Hewitt
A local family are aiming to raise funds towards a sensory garden for their disabled daughter.
Alice and Phil Johnson, of Fleming Gardens in Clifton, have set up the ‘Root for Rubie’ campaign in order to help their daughter Rubie have a better quality of life at home.
The brave four-year-old was born with CMD (Congenital Muscular dystrophy), a rare muscle disease which prevents her from walking upright and talking out loud to others.
Alice said: “Ever since Rubie was born, she has been an inspiration to everyone around her. Everyday is a milestone for her.
“She never fails to make everyone around her smile and she never fails to melt our hearts.
“Congenital muscular dystrophy is a cruel and taunting disease which affects hundreds of children and adults each year.
“We want this campaign to help raise both awareness and build a magical garden for our Rubie.”
The family have set a target of £3,000 to raise towards the garden and have set up donations through the website, Go-Fund-Me.
The garden is designed for Rubie to help her develop and encourage her to learn to walk and have space away to play with her younger sister Lylah.
‘Root for Rubie’ is being supported by many people, including close family friend Charlotte Batterham, who has encouraged others to get involved through her Facebook fundraising auction page.
Charlotte, who is also from Clifton, contacted Willow Tree Services in Cotgrave, who have agreed to build the garden once the materials needed have been obtained through fundraising events.
“I love what I do. To see the smiles on people’s faces is a total joy,” said Charlotte. “This project shows just how helpful people are to help out such a great cause.
“It’s a pleasure to see Alice and Phil’s trying so hard, and I know It means so much to both of them for their little lady to get the best start in life that all children deserve.”
Rubie’s father Phil says he is overwhelmed at the support the family have received so far in fundraising for their daughter.
He said: “The response so far has been utterly overwhelming and I can’t thank Charlotte and everyone else enough for the generous support they have shown my daughter.”
The Johnson’s will be hosting fundraising events at the Fairham Pub in Clifton on 14th May and at the Catchems Corner in Basford, with a date for the event yet to be announced.
To donate to Rubie’s garden, visit gofundme.com/tdp43a7w